COVID-19 and Hearing Loss
Understand the risks, and be prepared.
20 March 2020
The COVID-19 pandemic is on track to become the greatest disruption to society since World War II. This virus is the most widespread infection since polio during the 1900-50s. The U.S. has declared a state of emergency to decrease the spread of COVID-19. Currently the recommendations are to stay 6 feet away from other people and to practice social distancing.
Our one page summary contains all you need to know about COVID-19. It is easy to read and low-vision accessible. It covers the following topics:
- What COVID-19 is
- The risk of COVID-19 to you
- Why it is a problem for the healthcare system
- What to do if you are sick
- How to stay calm and positive
- Information for healthcare providers
ASL COVID-19 resources:
Deaf and hard of hearing may be at higher risk of getting COVID-19 and becoming seriously sick
Second, DHH people experience communication issues that make it hard to interact with other people. These issues can result in loneliness, anxiety, and depression. These feelings can occur at home or at a hospital. Most importantly, these feelings may weaken the immune system. The immune system fights disease. When it is weaker, you may be at increased risk of catching COVID-19.
Third, DHH may experience discrimination and fewer job opportunities. They also spend more money on health care such as hearing aids and assistive technology. Because of more limited financial resources, it is important to be aware of how COVID-19 can affect you.
Lastly, DHH people may know less about how to manage health problems. Hearing people overhear families talking about health problems at the dinner table. During these discussions, stories are shared about how “Granny managed her heart attack.” These stories may be brief, but knowledge is exchanged. People learn how to manage illness, communicate with doctors, and take care of loved ones after discharge from a hospital. In the COVID-19 pandemic, hospitals may be chaotic and overwhelmed. It may not be possible to get interpreting services.
For all of these reasons, it is critical for DHH people to plan ahead.
Plan ahead for healthcare
Before going to the hospital
Have a plan in place before you get sick. Being prepared ahead of time is key. In an epidemic, the hospital can be overwhelming. You may be in a temporary isolation tent or placed in a hallway. You may not have access to communication tools that you usually get. Again, being prepared ahead of time is *key.* Make a plan with your family if you’re not ready.
First, see our guide on COVID-19. Second, become familiar with your doctor’s office to decrease confusion in case you need them. Contact your doctor’s office ahead of time. For hard of hearing people who If you use the phone to call in become familiar with their phone menu. Use a Video Relay Service for ASL or text-based relay service, with or without Voice Carry Over (VCO) such as SprintIP if needed. To save time and frustration, see if the office will give you a direct line to their nurse. Many offices now have smartphone apps or online webpages to bypass the telephone and contact their office directly. Check your doctor's website to see if they have a MyChart or MyHealth login.
At the hospital
Right now, hospitals can be very overwhelming and may seem to be a chaotic place. You may be placed in a temporary isolation tent (by yourself) or in a hallway.
If you must go to the hospital, you may experience some communication frustrations. Follow this checklist to help:
- If at all possible, bring a friend or loved one to act as your advocate. It helps if this person has medical knowledge.
- Bring things with you if you will stay at the hospital (smartphone, chargers, hearing equipment). Have a bag for your chargers.
- Keep your hearing equipment in your ears to prevent loss.
When hospitals are busy, it is easier for nurses and doctors to make mistakes. See this hospital survival guide for tips before going to the hospital. It includes tips such as bringing a list of your medications and creating a living will so family members understand your wishes. This healthcare access toolkit provides information for healthcare providers about accessible healthcare.
Planning to go home
Plan for how you will leave the hospital before you leave (see link). Social workers and discharge planners usually help with this. Some of the things they do are:
- Determine where you will go—home, a relative’s place, or facilities such as skilled nursing or rehabilitation.
- Determine who will care for you after discharge.
- Make sure you have access to medications and services after discharge.
Having a plan is essential. Remaining in the hospital with discharge-related delays is dangerous. You can catch infections that are transmitted in the hospital. There could be an error related to your treatment. Contact the social worker on your hospital ward to get this process started. Check in twice a day. During such a busy time, you may need to take charge and look out for yourself.
Preparing for communication needs
- See this video for how to introduce yourself as a person with a disability.
- Resources for knowing your rights and how to establish a communication access plan in the hospital.
- Consider printing these useful signs to place in your hospital room. See if your hospital has assistive technology or a hospital kit for those with hearing loss.
Communicating in the hospital
Know your communication rights in the hospital. Healthcare providers will be wearing masks. You will likely be in isolation to stop disease from spreading. This can make communication challenging. Some ideas:
- You have the right to communication access whether you speak or hear. Options can include:
- Apps such as Google LiveTranscribe and Microsoft Translator can be backup communication aids that provide captions for speech. Wired or wireless lavalier microphones can increase accuracy. Wired mics are easier and less prone to being lost in the hospital.
- Use a personal whiteboard or a boogie board.
- Clear face masks and biosafety suits (see figure) are types of clear surgical masks. They are in incredibly short supply and are most likely unavailable. Clear face masks must be purchased ahead of time. They are currently backordered. For help obtaining communication-friendly equipment, ask for the charge nurse of your ward or hospital nursing supervisor.
Getting a Cochlear Implant During Pandemic COVID-19
Cochlear implantation is generally “elective”
In general cochlear implant surgery is elective or non-urgent surgery. Given the seriousness of COVID-19, you should strongly consider rescheduling your surgery. It may be some time (e.g. a year) before you may get your surgery. Some patients may be concerned about longer durations of deafness since this has been shown to worsen cochlear implant outcomes. Fortunately, the short period of time to wait for COVID-19 to pass should not have an appreciable effect on cochlear implant outcome. This is because “long duration of deafness” is defined as longer than 10 years since hearing aids were beneficial.
When is cochlear implantation urgent?
In two instances cochlear implantation is not elective and surgery must proceed urgently. For patients with meningitis, bony growth (ossification) start to quickly block the inside of the cochlea. The inside of the cochlea must be free of bone so that the electrode can be successfully placed. The second instance is congenital hearing loss. For families who wish to maximize their hearing potential, cochlear implantation as early as possible has been shown to improve language outcomes. The latest research shows that even a month can make a difference in final outcomes.
This article was originally published on chadruffinmd.com, and has been re-published here with the permission of the author.